Sunday, March 18, 2012

Aida - eats like a machine - Lee

No surprise, I'm not the best with updates (or photos as you can see), but it's been a slowish week, but I guess no news is good news. :) Still, here are the basics for this week...

*Aida started a beta blocker that was discovered in recent years to be successful in shrinking infantile hemangiomas, so we are all hopeful. In the meantime, they are stepping down the steroids. Please still be praying for these to shrink. We're expecting her to have another MRI on Friday to check in.

*There is talk of going home next week! We still have a hurdle or two before we're cleared to leave, but because we live so close and can return to the clinic (probably 2x a week or so), we will be out of here sooner than we might otherwise. I definitely don't want to leave before things are completely stable, so as exciting as home is, I am waiting patiently. Seriously. And I imagine we'll need a few prayers for that transition as well. :)

*No more wires! For various reasons, Aida has continued to have heart/breathing/other stuff monitors...until tonight! Woohoo! I feel like I have a baby doll. :) Once we moved into our "real room" the monitors seemed ridiculous anyway since they beepd ALL THE TIME because the sensors are not really made for babies. After an initially stressful night and day, we got a remote set up so there were no alarms in the room. But tonight, they took her off all of them - finally!

*Mark's parents arrived Thursday night/Friday morning, so we're trying to be sure they get their fill of Aida time. :) They'll be here through mid next week though, so if we end up going home they may get more time than they expected!

I'm sure I'm forgetting things, but I think this should cover most of it. If not, Mom can remind me. :) Going home seems very exciting, and it feels like we are getting to a place where things will be "manageable", but we could still very much use a miracle - and your prayers in general for all the adjustments and unknowns to come.

Love to you all!

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