Friday, March 9, 2012

Aida Update

We hear every day that Aida's is an "unusual" case - even for Vanderbilt. ;) Here are the basics as of Friday afternoon...Biopsy has been sent for second "stain" to triple check result, though it appears to be as we all expect. The lesions are infantile hemangiomas and are not malignant. Her platelet levels are maintaining, fibrinogen (other blood factor of concern being affected by hemangioma on the liver) is behaving the same as it has - dropping and being supplemented by fairly regular transfusions of cryo-somthing or other. There is not yet great concern about this as the hemangioma is doing what hemangiomas do. Still praying that these - especially this one and the one brain do not grow which would cause greater concern.She's eating like a CHAMP and thrilling the grandparents...and the nurses too, I think. :) Still jaundice but improving (all the eating helps). MRI is scheduled for tonight, but we don't expect to hear results until early next week. PICC (long term central line to draw blood and give transfusions) put in her leg today so no more sticking her all over!

We're expecting to meet with the team of doctors mid-next week or so after ALL the results are gathered to discuss a plan. We hope to know more about how long we will be here (or at least the NICU), but that may be hard to say.

PLEASE BE PRAYING:Several of the hemangiomas that are visible are growing. They do typically get larger before shrinking, but the ones on the liver and brain are already large and obviously could cause other real damage.There are many ups and downs EVERY DAY - most hours. Mark is working all day, and I'm still recovering while doing the new mommy things that are helping to make her better. It is a lot.

Thank your continued prayers and encouraging notes and all the other support we are receiving. Love you all!

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