Quick update...
There is no treatment change yet, but I think next week may bring the reevaluation. Indicators were not great earlier this week though as her fibrinogen was low and required an infusion - but there's still time! She also received red blood cells which among other things are helping her crazy irritability. Who knew low iron could make her scream bloody murder endlessly? Anyway, she's been given new medicine for her stomach to counter the trouble caused by the steroids as well as antibiotic to protect against infection. There are still some tummy troubles, but all in all, she's a much happier baby!
Her platelets were also low-ish on Tuesday, but they didn't want to do 3 infusions in one day, so we went back Thursday to have that checked. Honestly, there really wasn't time to do more infusing than we did. We shut the place down (6 hours at the clinic that day!). :) Just as well though since her platelets were up a bit on their own, so no infusion. Woohoo! I told Mark we'd been "in and out" then realized we'd been there 1.5 hrs. It's all about perspective!
We go back Tuesday for more of the same. We're hoping that the numbers will be improving with the continued use of the steroid. It'd be really great not to get an infusion at all! And I'm sure that would be a great encouragement to her doctors as well to keep on this course.
Thanks for continued prayers from family, friends and those who don't even know us! We couldn't do it without you! Love to all!
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