Well, I don't know if it's nice there or not, but we're gonna find out!
Our plans have been pretty seriously altered today, and a trip to Cincinnati is in our near future. After very low numbers on Tuesday followed by infusions, Aida's numbers were very low again today. We'd expected a "quick" lab visit today, but we stayed for an infusion. We're going back tomorrow and will most likely spend the weekend in the hospital so they can monitor her and administer infusions since the numbers are dropping so quickly and severely.
The specialist our doctors have been consulting with is at the Cincinnati Children's Hospital where we will be going next week - probably Tuesday or Wednesday. We'll be seeing this specialist at the Vascular Malformation Center there - which is what she has all over her body, inside and out. If there's a place to go for what she has, this is it. Instead of the chemo treatment we'd been prepped for, we may be looking at a clinical trial. We've been told to prepare to stay for 5-7 days, but it may be less than that. Once the appointment is set, we'll look into lodging at the Ronald McDonald house. We are hoping and expecting the treatment will still be administered at Vanderbilt, so we wouldn't be running back and forth to Cincinnati.
Until next time...
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