No News Isn't Always Good News...

But in this case it is. :) We've just been plugging along. DRAMA-LESS. Numbers last week and this week have been good, and her incisions are healing well. She's playing a lot more and has started talking. Also, the tumors that were removed a couple of weeks ago seem to indicate that these ARE a type that go away. Very good news!  Of course, the story changes all the time, but we're hopeful this is IT. 

Aida seems to be feeling like her old self - good days and bad. Mostly good-ish. All that should improve as well as we finish steroids and are able to stretch chemo to every other week. So here's your chance to pray for a miracle that will amaze the doctors. Aida will have her last (we pray) dose of steroids on Friday. We'll then have a few days before a test that will determine whether or not her body can make its own steroids. She has been taking steroids SINCE BIRTH, so her adrenal system has never had to work for it. If it doesn't make sufficient steroids, she'll have to take a different kind of steroid to help jump start her system. But wouldn't it be amazing, exciting, fantastic, MIRACULOUS if she didn't have to have any help? Yes. Yes, it would. Please pray that her body will work like it is intended to! Once she gets over the steroid hurdles, we can begin the biweekly chemo. That will be amazing for so many reasons! 

Also, we'll be starting the process of getting TN Early Intervention involved. They'll help us to identify and work on any areas of developmental delay. I'm actually excited to get started. We don't think she's terribly behind (maybe not at all in some areas), but she has missed some weeks of life with hospital visits, surgeries and so on. :) I just like the idea of having a plan!

And finally, while she IS eating less each time, Aida is still eating every 3-4 hours. Sigh. Tired. In general. Tired of being tired. Tired of whining about being tired. Going to sleep now while I can.  Zzzzzzzzzzz. Oh, and of course thank you for continuing to pray for total healing, peace, rest, financial provision, wisdom...Did I mention I was.....Zzzzzzzzzzz.....