I'm probably disproportionately worried about the changes. Six hours a day four days a week (plus Sundays), three of which are at home, somehow feels like the dream life I've been leading is ending. It's not, of course, but I'm freaking out a bit. We couldn't get a much better set up, but like I said, it feels like summer is over. That said, we're very grateful. Last time I wrote I mentioned having a meltdown then God showing Himself over and over. One of those showings came in the form of an email from someone at the church asking if I might be interested in a position they had available. Just days before I had blubbered on the phone to Mom about not knowing what the next step was. I didn't have any idea. This time though, I didn't have to know. It just appeared. That almost never happens.
So the change is here. Aida will be just fine and will hardly know the difference, so please pray for ME :) Aida is doing well (though not yet sleeping through the night. :) I was hoping to have had imaging this past week, but it isn't scheduled for another week and a half. THEN - assuming all is well, and we're pretty sure it is - we will be able to space chemo a bit farther apart. For now, her numbers are pretty good. They bounce around a bit, but it seems only one drops at a time, comes back up then another drops. More importantly, the drops are still in normal range for the most part. It's hard not to be a little concerned when watching so closely like we do, but we've been in pretty good shape for a while. Praying that continues! And seriously, pray for me in the transition. I'm not TOTALLY freaking out. I'm just mostly freaking out.
And coming soon...I'm finally working on something of a photo essay. I've been pretty good lately about not wanting/needing to hide the exposed tumors when we're out, but I haven't really been ready to "publish" them. Of course, on occasions when the little tumor on her toe has been visible, I've felt badly for unsuspecting people who don't know how to react to the (basic) answer of what they felt was a simple question...and felt annoyed as Mark was given recommendations for alternative therapy to the chemo poison we're giving her. :) I'm sure they all mean well. Anyway, many of the people who have met Aida have seen her in all her glory, and I know that many who know her story are curious. Somehow it feels better in person, but we'll never see all of you in person. :) Besides, at this point there is a progression to see which I'm anxious to share. So! This week when I have access to a computer that moves faster than a snail's pace, I'll get it put together.
Until then, time to get to work on that to do list!
Congrats Hannah!!! Think of you all often!
ReplyDeleteI don't even remember how I found your blog but ever since I did I have been following Aida's story and praying for ya'll with excitement and anticipation at what God is doing in all of your lives. Whilst working on a marketing plan for class Aida kept coming to mind and it just dawned on me that it's because there is a promotional concept called AIDA. The tall letters are what confused me and then I'm all like that's why Aida is in my mind because I'm writing about AIDA. Then I thought about what AIDA stands for, Attention, Interest, Desire, Action. I find it fitting in your story. Your Aida is bring "attention" to this condition (in a positive way) which leads to "interest" in what the condition is really about and how it is affecting your families life and what sort of treatment is available, then the "desire" to do something to help kicks in through contributing money, prayers, etc and finally "action" happens by doing as such. When conditions that aren't well known are brought to the light it can help fund research money to help improve treatments among other things. Your faith that is expressed also helps to encourage others. Thanks to your little one's name, I can now apply/remember marketing concepts. So glad to read that things are improving and you are seeing Jesus come through time and time again. Praying for this transition time for you and your family.
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